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Ice Bucket Challenge funds gene discovery in ALS (MND) research(2)

1
2016-07-29 14:57China Daily Editor: Yao Lan

2014年夏天,人们往头上浇冰水为渐冻症募捐的视频席卷了社交媒体.

More than 17 million people uploaded videos to Facebook, including many celebrities who rose to the challenge, which were then watched by 440 million people worldwide.

超过1700万人在脸书上传了视频,其中包括许多接受了挑战的名人.全世界有4.4亿人观看了相关视频.

冰桶挑战

ALS冰桶挑战赛(ALS Ice Bucket Challenge)简称冰桶挑战赛或冰桶挑战,要求参与者在网络上发布自己被冰水浇遍全身的视频内容,然后该参与者便可以要求其他人来参与这一活动.

活动规定, 被邀请者要么在24小时内接受挑战, 要么就选择为对抗肌肉萎缩性侧索硬化症捐出100美元.该活动旨在是让更多人知道被称为渐冻人的罕见疾病, 同时也达到募款帮助治疗的目的.

仅在美国就有170万人参与挑战,250万人捐款,总金额达1.15亿美元,这可能是为某种疾病或紧急情况捐助最多的款项.

What is amyotrophic lateral sclerosis (ALS), also known as motor neurone disease (MND)?

fatal, rapidly progressive disease that affects the brain and spinal cord

attacks nerves that control movement so muscles refuse to work (sensory nerves are not usually affected)

攻击运动神经,导致肌肉无法工作(感觉神经通常不受影响)

can leave people locked in a failing body, unable to move, talk and eventually, breathe

患者受困于衰弱的躯体,不能移动,不能讲话,最终无法呼吸

affects people from all communities

所有人群都可能患病

scientist Stephen Hawking is best-known person with the disease

科学家史蒂芬•霍金是最有名的渐冻症患者

kills around a third of people within a year of diagnosis and more than half within two years

确诊后一年,约有三分之一死亡病例,两年内死亡数过半

 

英文来源:BBC

 

  

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